Tuesday, December 30, 2014

Grace-Anna's Adoption Story

Grace-Anna’s Adoption Story

It was January 20, 2012. Jaret and I sat together in front of the computer screen and waited for the list of waiting children. It was a blizzard outside and we were about to lose our internet connection. We had called our agency and requested a couple of different files from the waiting children’s list.  We were able to receive our email and bring up the first file on the screen and then the internet went down because of the storm.  None of the other files we had requested would come up.  Our screen was stuck on one little Chinese Orphan, Fu EnHui. We had asked God to make our choice for us. To connect our hearts to one little girl who needed us.  Here we were, on that frozen day, with our internet frozen, staring with frozen eyes to the little girl who waited at the Social Welfare Institute of Yingtan City.

Her profile said she was born on October 30, 2009. It went on to say at 7:30 on December 20, 2009, she was abandoned. She was left with a birth note and some clothes.  It added some details about her daily living and then the words, “Although she can not see anything, she responds to sound.”  “Now she is 1 year and 1 month and she is quiet. She does not know familiar persons.”  Then, nothing else was said about little Fu EnHui. 

We immediately called the best pediatric eye specialists and asked them to review her file and give us their best opinion.  I remember I was sitting in the parking lot at the grocery store when the call from the Dr. came in. She was gracious enough to call me back in the evening after reviewing her chart.  She told me in her opinion; I should be prepared that this child would never see.  I came home and talked it over with Jaret.  He didn’t even have to think about it, he said, “This child will either glorify God with the miracle of sight, or she will glorify Him through her blindness.”  We agreed to get the papers started immediately!  That night, Jaret dreamed of a Chinese girl playing the most beautiful piece of music on the piano. There was no sheet of music to be seen, she was playing from her heart.

There was more information sent to us about Fu EnHui. She had been brought to a foster home until she was 8 or 9 months old. Then they returned her to the Institute. I don’t know why, nothing is said. I just know that this precious baby lost another family that cared for her. She was brought to the special needs institute and left, again.  And there she stayed for almost 2 years.

While we waiting for endless paper trails and tons of legal matters, we got a gift.  The orphanage sent us some photos of our girl. I cried my eyes out as I stared at a tiny little thing that couldn’t stand on her own. She was so skinny and cold looking.  We also noticed a few things in the pictures, like her crib had tie downs in it that they used to tie around her ankles. She also sat in a chair that spread her legs open wide with a potty-bowl under it.  These images were so hard for me to see knowing I couldn’t get to my child.

As papers came in and releases were given, we were planning our trip to China on September 6, 2012.  When we arrived, we were taken all over Beijing to see beautiful sights and the normal touristy things.  Then, September 10 came. We arrived at our hotel in Nanchung and were told they were bringing our girl to us! What?? Just like that? I didn’t know what to do. I was exhausted from all the travel and airplane flights, but there was no way I could take a little nap. So I sat and looked out the window. 

The knock at the door startled us all! I was shaking with excitement. It was my “birth” moment. I have been blessed to birth 2 of my babies, and I can tell you, that moment right before you hold your child, no matter how they get there, it is the same. She may not have been in my tummy, but there she was, right on the other side of that door.  Jaret opened it and there was, the tiniest, little, scared to death,  Ladybug.  My Ladybug!! She was wearing a cute little pastel green shirt and pants with socks and jelly shoes on. They had done her hair in many little ponytails all over her head.  She was clutching a piece of paper. Something they had given her on the car ride over to comfort her, I’ m sure.  The lady handed her over and asked if we had any questions. Questions??? Yes!!! But I had too many swirling in my head for just one to come out. I didn’t know what to say. They talked some legal matters with our translator and waved goodbye. 

“Hello, Little One, I am your Momma. And you are Grace-Anna.”  She sat there expressionless and didn’t like this crazy woman touching all over her.  I can’t begin to imagine what she must have felt like.  She was pretty quiet at first.  It was later that she found her screams and wouldn’t stop using them!  We realized we didn’t have anything to feed her with, so Jaret ran out to the market and bought her sippy cups, bottles, spoons, anything for a baby/toddler to eat with.  We tried to give her drinks of milk, water, or juice and nothing would go in right.  She kept choking and spitting everything up. I had no idea how to feed my poor baby. The next day we found out that at the special needs orphanage, they did not feed the children. They mixed up the required food and milk and nutrients in a blender and went child to child with a syringe.  My three year old had no idea how to eat or drink.

That night I decided to give her a bath.  When I took off her clothes I saw all of the scars she had from head to toe. Some were freshly scabbed over. Her legs were like leather with scratches and scabs all over them.  As I put her into the bathtub, some of the scabs washed off. I sat there on the floor of the bathroom in a hotel in China and I felt Jesus right by our side.  I began to sing “Amazing Grace”.
Amazing Grace, how sweet the sound
That saved a wretch like me.
I once was lost, but now I am found.
Was blind but now, I see.
Twas Grace that taught my heart to fear
And grace, my fears relieved.
How precious did
That Grace appear.
The hour I first believed.
I saw myself in that bathtub. I was scabbed over, lost, rejected, and afraid. But then my Lord came to wash me clean and because of His scars, I am saved! It was a beautiful moment! Grace-Anna had already begun to show me Christ’s love.  And that’s what she does, still to this day, she shows me how to live more like Jesus.

These two years since we brought her home have not been easy. There’s a lot in the adoption world that you are not told about.  I had never heard of Sensory Processing Disorder before. But now I know my two adopted daughters are poster children for this disorder. The scars Grace-Anna had all over her body are mostly self -inflicted. She would sit there and pick and pull and scratch herself all over just to feel something. She still continues to do this when she frightened, or over-stimulated, or under-stimulated, or in pain.  She still sleeps in mittens every night. I am now very educated in sensory therapies. We do them every day. She also wears a knee cage on her left knee because her physical therapist found that she has a torn ACL in her left kneecap. Our best guess is from falling out of her crib with her leg tied down.  Her hips are permanently deformed to look like she just got done riding a horse. This is from sitting hours and hours a day in the potty-chairs that kept their hips over-stretched. Her little feet turn inward when she tries to walk because of the lack of muscle tone. She is still not potty trained (far from it) at 5 years old.  She lacks the muscles to hold in her potty.  Her little hands shake when she tries to string beads, feed herself, get dressed, or anything that takes work from her hands. She can not sit still to listen to a book or hear a movie. She can’t tell me of her emotions yet. She refuses to speak Chinese or talk about anything from China.  She still has night terrors, the worst you’ve ever seen.  We will never know what our baby’s life was like. I’m sure she has endured more than we could ever imagine.

We have done our best to bring her sight. We’ve been through numerous surgeries, 3 corneal transplants that have all failed, and we still give  11 drops of medication in her eyes a day.  After her transplants, she had a glimpse of sight. We talked about flowers and colors and cars and people’s doors along our walks.  She saw the beautiful things that God has created, even if just for a brief moment.  Her eyes have clouded over again and she is back to relying on touch for everything.  This is God’s plan for her life. I am finding peace with it.  My husband showed much wisdom from the beginning in saying that she will glorify God either with sight, or without. 

Now, let me tell you about my precious treasure.   From the moment she wakes up, she has a smile on her face. She loves life!! Everyone who has ever met her, talks about her smile and her joy.  She teaches me to love the little things.  She is grateful in everything. Every night, she practically vibrates with excitement at pajama time. She asks, “Can I get pajama on?”  I tell her yes, it’s time to put our pj’s on and she acts like it’s Christmas morning…..every…….single…..time!!!  She is opinionated, and will not be pushed around from her sister.  She never complains about anything you put before her.  And she tries her hardest to do what you ask of her.  She could teach this world what it means to love.


People often say things like, “She is so lucky.” They have no idea that it’s the other way around.  Since the moment Grace-Anna Fu EnHui came into my life, she has made me more like Jesus.  He has a lot more work to do on me, but we’re making progress. New hurdles are cleared everyday.

Jesus looked the whole world over and set the lonely in my arms!  He sent a blizzard to place His child in our family.  We named our child, Grace-Anna, which means double portion of grace. While we were in China we asked what EnHui meant.  Only God could have written this story. Her Chinese name means to bestow or give…..Grace.


Sunday, December 28, 2014

Multiple Sclerosis



I’m ready to let the world into my journey. I have multiple sclerosis. Two little letters, MS. Those two little letters have changed my life.  I’m not who I used to be. And that’s not all together a bad thing. In a weird sort of way, MS  has been a gift from God. Although days like today do not feel like a gift. But, hear me out, I HAVE to walk daily with Jesus through this illness. He never leaves my side.  And for that I am thankful.   My pride is being stripped away. I’m learning to be grateful for the small things.

I’m learning to give my old dreams over to God and with open hands, accept the new journey He has for me. Some days I feel stronger than I’ve ever been. It’s not easy though.  Since we are all friends and I’m being honest here, some days I just cry. This new normal is not very nice.  I have to focus forward on what’s next. If I look back to when I was this…. Or when I could do that….Or we were going to do this…..  I lose a piece of me and I feel weak and sad. But on those good days when I place my trust in my God and I can lean on my family, the future doesn’t look so scary.

I’ll write more of my story soon. I want to let you in on my journey. I need the encouragement of my friends and family.  I’m learning to laugh along even this journey.  On Christmas Eve, the family went to lunch at Barrow’s pizza. I got the salad bar and I thought I was putting salad in my bowl, but instead I was missing my bowl completely and was throwing the salad on the ground! I laughed and said it was a new meaning to a “tossed salad”. J  Gotta laugh.


Thank you for your prayers and well wishes for me and my family.  I have a long journey ahead and I don’t really know what it will look like. But I do know that it will be ok. “For when I am weak, then I am strong!”  


Thursday, October 16, 2014

Rinse, Lather, Repeat....

I'm thankful for my kids, I'm thankful for my kids, I'm thankful for my kids.... Today's mantra. Rinse, lather, repeat.  Somedays I want to lather their little heads right off! You know what I mean?? This is how my day has started.

5:30 a.m. My alarm reminds me that I am a mother of 4 and that I must leave my cozy sanctuary.
5:45 a.m. Make life-sustaining coffee and try to watch the news.  "Ebola, Ebola.." Turn off T.V.
6:00 a.m. Must wake up the Littles to get ready for G.A's "school" (her therapies)
6:05 a.m. Hand G.A. her walking cane and point her toward the bathroom and tell her to go potty.
6:10 a.m. Begin to make breakfast. One asks for an egg, the other orders oatmeal.
6:15 a.m. My Man-Boy comes downstairs and flops on the couch.  This is his attempt and waking earlier and being more productive. Ha!
6:16 a.m. Realize I haven't seen G.A walk past the kitchen yet.  Go find her in the dining room, turn her around, and re-send her on her way.
6:20 a.m. My chocolate chip comes dancing to the table with her 18 ft long-stupid-blowup-stupid-SpongeBob-stupid-carnival win-stupid-baseball bat (side note: find person who created those stupid blow-ups for kids and beat them almost to death with them)
6:25 a.m. Realize it ain't happening and take G.A. to the bathroom and get her cleaned up myself.

While we're washing up, I hear it!!! The fighting started!! Chocolate-chip has decided to dance in front of her brother with her 18ft long-stupid-.... (you get the point). I hear her begin the taunting, little girl song and dance. And I hear him in his deepening-man voice threaten her. Back and forth they go. Until the crescendo of the high-pitched screams of "Let me go!" Then....CRASH!  Why is it always my things that get broken?

I feel my face begin to twitch and my heart begin to race. I march into the room to find the offenders and beat them talk to them about what is going on. Why is there always two that don't get along? I have a set of those!! Mine are 14 and 5! For heaven's sakes, these two!!!

Our neighbors already think we're crazy. I thought I would give them more details of my craziness by screaming at these two with the windows open! I think I'm having an aneurism. It's not even 6:30 in the morning, people! My coffee hasn't even gotten into my bloodstream yet! I mean, really!!! Please, someone tell me it will get better before noon. Seriously, $5 to the first person that tells me it will get better before noon!

So, I banished them to their rooms and left my quiet, not-getting-involved-in-the-mornings-festivities, 17 year old daughter in charge while I drive the almost 30 minutes to take G.A. to her class. I'm late in taking her because of the "scene" so I must take her eye drops and administer them en-route (don't ask). I get to her school and realize I'm wearing my house shoes! Oh well, I'm sure I look frazzled and half-crazy anyway by the way my face is still twitching.

The drive is peaceful. Breath....Breath...Breath....

When I get home, my eldest daughter tells me that today is super hero day.  (To be honest, I'm thinking she's going to ask me to "throw something together" for her and bring it to her school) But no.  My daughter dresses up like her hero and goes to her senior year of high school as......ME. Now, that's grace in abundance, people.

9:00 a.m. About to go on my morning walk. Then start the day of home-schooling the crazy 2 that drive me....thankful.

Tomorrow will be another day. My rinse, lather, repeat will start again. I guess I better stop the twitching and put on my cape!




Wednesday, October 15, 2014

Gift Eyes




My first blog entry and it’s not too light hearted. But it is on my heart so I better write it out.

Our Chinese daughter is 2 weeks out of a double corneal transplant. That is huge! When we first laid eyes on her precious little face almost 3 years ago, the medical exam attached to that tiny girl said it plain and clear…. “can not see”. We quickly called top notched pediatric eye specialists only to hear, “She will most likely never be able to see.” She was almost three years old and living in a special needs orphanage in Jiangxi, China. Surely by now her pathways between her eyes and her brain were dead.  No information had been transmitted down those pathways, so they close.  Our fear was they’d closed forever.
Fast forward two years.  She had a “glimpse”. G.A.’s first cornea surgery was back in July. The surgery went well, it was tough, but she healed.  Over a month went by before we began to see some success from the surgery. She would pick up toys and hold them to her “new eye”. I began to work with her on flash cards and matching games.  I got increasingly excited as she would point out colors and objects. One day we were walking to the park and she exclaimed, “Mommy, see those beautiful yellow flowers!” 


What went wrong? It was about two weeks later when I noticed she began to bang into walls and trip more frequently.  I decided to lay out her favorite matching game and test how she was doing.  My heart sank as she could not see a match. I pulled her close to examine her eye only to find out that I could no longer see the pupil, it had clouded over.  My husband got off of work and we drove across the city to her Cornea Dr. I fought back tears and he told us her new cornea had failed. 
I struggled with many questions. Was it my fault? Did I not give enough thanks? How quickly the “hugeness” of a situation in our life becomes the norm. My blind Chinese daughter walked with me and we spoke together of the beautiful yellow flowers!! HOW DID I BECOME COMPLACENT?  
Her Dr wants to be more aggressive this time. He is going to do a double cornea graft on both of her eyes. This will be our last try. We are giving it all we got! No more dipping our toes in faith. We are going to walk across that water. We are standing on faith that her sight is on the other side! Lord Jesus, please hold my hand.  I do not have the strength to make it alone.
So, today I went for a long beautiful walk in the cool of the morning. I walked and talked with Jesus. I asked Him for more faith and promised more gratitude. I looked at the grandeur of the mountains, the brilliant blue of the sky, the waning green on the trees.  I WILL give thanks for my sight.  I WILL give thanks that my daughter had a glimpse.  I WILL stand, boldly, in prayer and ask the Great Healer if He will touch my daughter and give her sight. 
I began to think of the wonderful gift we are about to receive again.  This gift formed in a mother’s womb. These eyes belonged to someone’s child. These eyes closed  for the last time and someone said “goodbye” to their baby. You can not even imagine the heartache and loss that someone, someplace had to just feel.  And yet they made the choice, to donate, to give my daughter the HOPE OF SIGHT. The magnitude of this gift will not be lost on me.  Not this time! Every time I will look into those beautiful eyes, I will remember the gift that was given and I will be thankful! I will take the time to experience and soak in every color and every vision that my daughter will share with me. 

She has come from half way around the world and she has had a glimpse. Lord, please have compassion on her and heal her sight through these gift eyes.